Please post your memories of Emily under the "Memories" topic, or email your photo's to emtarp5@yahoo.com.

Sunday, November 16, 2008

Sunday 11.16.2008 6:06 am

Medically, the brain condition has not changed. Her vitals are less stable. Her ICP (Inter Cranial Pressure) is spiking again.

We are making contacts with other medical professionals.

Hanna and I have been sleeping with her. Emily is Hanna's strength.

I find my heart breaking. I find my self sad. I find my self laughing and joking, I find myself wanting to hear stories. I find myself wanting to be with people and then I find myself just wanting to be with Emily, quiet and alone.

I find strength in Emily. Emily and I have had a very special relationship. Man, that girl can talk. We talked about everything...feelings, life issues, friends, school, soccer, people, current events, boys, love. We felt so safe with each other. Ya, know usually around 13 us parents becoming the stupidest, most embarrassing person on the planet...Emily never made me feel that way. I remember last year going to CRHS for some reason and she came over to me and walked with me, her arm around my waist. I felt welcomed.

I remember when Emily was about 11, and a little clarity came to me. Em, was talking and I was trying to tell her what to do and how to think, at least guiding her to those things, because after all that was my job, I was her mother and I knew what was best for her...and she got mad and told me I was treating her like a little kid...and this light came to me and told me to listen... Emily is giving me my strength to keep moving forward. So I'm listening...

31 comments:

Jackie, Mark, Juliette said...

Oh Sheryl,
I'm so sorry! I'm sure she is feeling the comfort of you and Hanna sleeping with her. Keeping her safe and comfortable. Our prayers are coming at you full speed. Much love,
Jac

Sandy and Tori said...
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Sandy and Tori said...

I found this the other day and thought of Emily right away becasue of all the lives she has touched and will touch.

Touched By Angels

Sometimes angels we can see
For they're friends to you and me
God works through people, you and I
Thoughtful ways to smile and say hi,

You never know the heart you touch
Even the smallest gesture is valued much

Angels around us every where
Protecting, guilding while they care.

Stephanie said...

Hang in there Emily and Family, time will heal.
Always Praying!
6 Chick Natashas' Aunt
Stephanie

K said...

Sheryl
Be strong.
Please be strong!
I love you.
K

Tammy said...

Sheryl,
Time passes and we forget how people impact our lives. Then things happen and the memories come back. My heart and prayers go out to Emily, you and your family. May God find the way to make miracles happen.
Tammy Allen

J McGuire said...

Sheryl
Our hearts are breaking for you and Em too! We love you and we're thinking about you and praying for all the Johnsons all day, every day. If all it took was prayer, Emily would be running laps right now!
love from mason!

Margie, Ray, Thomas, Brian, Grace, and Luke said...

I cannot say that I know what you are going thru or how you feel, but I can imagine and my heart brakes with you. Your strength, courage, love, hope, and faith are unsurpassed. Emily is loved by so many, and I know that she can feel it.

My memories of Emily are mostly from the younger years and all the time we spent together just hanging out, letting the kids play, eating endless ramen noodles, laughing, and enjoying the company. Emily was always happy, loving, and nurturing.

Stay strong ~ xoxo ~ Margie

Chrissy and Scotty said...

If any of us could possibly take a piece of the sadness and pain you are feeling and replace it with even a moment of peace, we would do it in a heartbeat. It hardly seems enough to offer up and send love inside the wings of hope and the belief that the spirit is indeed a mysterious and miraculous force. But it's what we have. The spirit is indeed AMAZING force. Our thoughts and prayers remain with you. Be strong. Hold hope tightly around yourselves as you bathe Emily in the light of all the love sent her way. Much love to you, chrissy

Bryan and Michelle said...

Sheryl, Dale, and Hannah~
Stay strong. Never give up hope or faith. There is light at the end of this, I feel it. I know its hard to see but she is staying strong and fighting. This is a slow process but Emily will come back to be that beautiful amazing girl I know it because I know my dear best friend is watching over her telling her to fight like hell. With that we send all our love and prayers constantly.
Emily~
Sweetie... I know you don't know me that well but heart is constantly breaking for you knowing how hard this is for you. But you are a tough girl with that fighter in you and the will to never give up. You have to stay strong and keep believing in the future.. Your family, friends, teachers, coaches, and all that love you all over this country. I send you all my strength and I know you will come back to us more amazing then ever. Just keep that fight and faith with you at all times. Also, know love surronds you with every second that passes.
We love you so dearly...
Bryan, Michelle, Alexa, Zack, and Brooklynn

Teresa Coyle Airey said...

Dear Sheryl and Family,
Words cannot express how hurt I feel for you and your families and your Mom & Dad & sisters & brothers & nieces & nephews and all those who hold Emily's wholeness to life in their thoughts and actions each day. You have a huge nationwide network of people who care and are here to help you and support you and comfort you through this uncertain time.... We love you guys from deep inside and our thoughts are with you every step of the way.
Much Love, Teresa Coyle Airey & Family Ashby, Mass.

Chelyn McCain said...

My mother and i have been praying soo hard for emily..when i get sad she tells me to remember how strong emily is and how nothing can keep her down...she reminds me that God is watching her and all our prayers (from everyone everywhere) are with her and will guide and help her!
I love You EMILY! and family!
-Chelyn

Bryan and Michelle said...

As I just posted a comment I feel as though I need to say just one more thing....
We CAN NOT give up hope or faith we need to stay strong and believing because that is what Emily needs the most. No matter how dark the clouds may become the sun will still come and shine sometimes with that beautiful amazing rainbow that seems like such a miracle of mother nature. Emily WILL show us her rainbow. JUST KEEP BELIEVING!!!

Karren Valenteen said...

Read this when you are ready for another story, actually one of my fondest memories of Hannah, Sammi & Emily. I came to your house to pick up Sammi and Emily dragged me out to the garden to show me where the fairies had been leaving notes. She was so convinced that the fairies existed that she almost had me convinced. Sammi talked about it all the way home and left a note outside that evening. I remember thinking "Damn Sheryl, what have you gotten me into"? Sammi and I had so much fun trying to come up with different ways to "catch" the fairies. Give Hannah a big hug for us.
Karren

i love you emily said...

i hope the best turns out for emily she is the person i look up to she encouraged me to go out for soccer and even though i was not good she helped me through it i hope everything turns out ok she is a hero in my eyes i love you emily i hope you get better best wishes to emily and the family
tawnie julian

Kelly said...
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Chris Rhodes said...

I know its hard not to, but don't worry, she'll be alright, she'll steady out, im going to see if i can come visit Emily this week, and express my thanks to you for fighting so hard. :)

Chamaigne Wade said...

Our thoughts and prayers are with you, please let us know if there is ANYTHING we can do.
Shawn & Chamaigne
(Amber Lyons, parents)

michael said...

The Capraro Family is praying for Emily and her Family!!

Chris Rhodes said...

Im sorry.

Chris Carlsgaard said...

Hey Sheryl,
After todays meeting in the chapel i was really sad and couldn't really grasp it. I find that i am still in denial of the whole situation and cant come to realize the news, but im sure when the time comes we all need to face our worst nightmares and accept the truth. When that day comes i hope i can look at the beauties of her life rather than the harsh reality brought to our lives. I heard some really great storys tonight that really brought to light some more of her unforgettable characteristics that are so special in people:) She is one i will never be able to forget and has impacted me so much in life that she has almost shaped my thinking in school and my outlook in sports. Her avid desire in learning and soccer i think has rubbed of on me a little and i am so greatful of that. Everything she brought to this world was of good intention and her light shined brighter than most out there. You were truely blessed to have a daughter of such stature, and i hope one day i could have one to compare to her. I am truly sorry for your loss and hope that you will let me know if you ever need anything.
Another angel got her wings.
Love,
Chris

Stephanie said...

In disbelief..... I am SO SORRY

Bryan and Michelle said...

Please don't give up hope!! Even as time are at its toughest there are still small miracles out there. I have seen it first hand and experienced with a very similar tragedy. Its not denial its faith. Sending you all my Faith, Hope, Love, and Strength.
Stay Believing!!!

hannahray said...

i just moved here and i dont know emily as well as everyone else.
but shes in my english class, and every time someone in our class says something strange or obscured. we both have the same look on our face and laugh at each other. her amazing laugh. which gets me to laugh more.
she is an amazing ,wonderful person.
never give up faith or hope in god.
you all are in my familys prayers.

hannahray

Keith said...

Sheryl, DJ, and Hanna, I will not give up hope that Emily will leave that hospital on her own two feet. She shines so bright to so many, giving light and hope, how can this be. Much love, Keith

Unknown said...

I wish I could be there right now and tell her I love her.

As her cousin I feel a sadness over the fact that I didn't know her as well in recent years as I would have liked. I would do my best to log onto Aunt Sheryl and hanna's and em's myspace and see what they were up to and I always knew that the Aunt Sheryl was an amazing mother and that the girls were happy and felt loved and that is wonderful I'm sure little em never once doubted that she was loved and cared for.

I also remember when I first met little Em she really liked playing house I think she was 3 or something and I remember thinking this girl is nuts :) she wanted to play house and have me be the baby which was an absurd notion to me and she kept calling me honey or darling or something it was very cute I love that one

I also seem to remember a picture that I thought I had had where em was about the same age maybe a year or so older and I must have been seven or so and I was hugging her so very tight and smiling my front toothless smile and she was just so happy she was always so very happy
and of course that's the one picture I can't find

I guess I have a lot of those memories I also remember quite clearly that I was the one that taught Emily and Hanna what Snot Rocket meant:) lol

I love you all please tell Little Em I love her.
Hanna, Auntie, and Dj hang in there.

God must really think a lot of us all to have given us a gift as great as Em.

TIMS TOOLS said...

Donations for the Emily Johnson Benefit fund are being accepted at Tims Tools in Silt. We have put up an "Emily's Angel Tree". Cash and flowers are being accepted.

Her positive spirit will be missed and live on in the hearts of those she knew.

kathyndicky said...

Emily and family..

I am from Roswell, NM. I attend Christs Church and we are praying for Emily. What a Mighty God We Serve!! Here's my prayer,
Psalm 118:17:
"I shall not die but live, and shall declare the works and recount the illustrious acts of the Lord!
God Bless, Kathy Hartman

Rhonda said...

Sheryl,
My heart and prayers go out to you and your family. May there be a miracle for Emily,in the propinquity, and may you and your family find the strength to carry you through.

Rhonda

Julie said...

Dear Sheryl,Dale and Hanna,
This is what Emily is saying to all of her friends, family and loved ones during this sorrowful time.

Safely Home

I am home in heaven dear ones:
Oh so happy and so bright!
There is perfect joy and beauty
In this everlasting light.

All the pain and grief is over.
Every restless tossing passed:
I am now at peace forever,
Safely home in heaven at last.

Did you wonder how I so calmly
Trod the valley of the shade?
Oh, but Jesus' love illumed
Every dark and fearful glade.

And he came himself to meet me
In that way so hard to tread:
And with Jesus' arm to lean on,
Could I have one doubt or dread?

Then you must not grieve so sorely,
For I love you dearly still;
Try to look beyond earth's shadows.
Pray to trust our Father's will.

There is work still waiting for you
So you must not idly stand;
Do it now, while life remains,
You shall rest in Jesus' land.

When that work is all completed,
He will gently call you home;
Oh, the rapture of that meeting,
Oh, the joy to see you come!

We hope that this can give you some of the peace that you so desperately need at this time during your grief.
Love,
Shawn,Julie,Shelby and Brittany Sands

BILL, STACIE, KELLY, AND JESSICA said...

We are so sorry for your loss. We will miss Em very much. I have been thinking of em alot this week and every time I thought of her, i would smile or giggle out loud. That is the type of person she was-very positive and a light to everyone she met. Her spirit will remain alive in everyone who know her. anything you need- let us know. Our thoughts are with you all.